Wednesday, October 16, 2013

Kayla is making an impact

Well, I'm glad to see that Kayla is continuing to make an impact. She inspires me every day to be a better mom. TREAT-NMD recently used some of Kayla's pictures in their brochure and website.


"TREAT-NMD is a network for the neuromuscular field that provides an infrastructure to ensure that the most promising new therapies reach patients as quickly as possible. Since its launch in January 2007 the network's focus has been on the development of tools that industry, clinicians and scientists need to bring novel therapeutic approaches through preclinical development and into the clinic, and on establishing best-practice care for neuromuscular patients worldwide."

Brochure - Page 10

Website - Overview - About Myotonic Dystrophy

Tuesday, September 17, 2013

Do You Lean In?

Ok, so how have another 2 years flown by and I haven't found time to write? I have so much to say, just not enough time to put it down. In the past few years, I have been through the most painful experiences of my life but that is a story for another day and likely why I had writer's block or "never found the time to write." Well, yesterday I was inspired by a friend and I think that it reminded me how healing writing can be so this won't be the last time you'll be hearing from me this year.

Yesterday I received a call from my dear friend Carla, for whom I have had the privilege of knowing for over 20 years. Carla wrote a very powerful article that I wanted to share with you called "Do You Lean In?. If you have ever experienced tragedy or loss in your life her message will resonate with you. In her article Carla bravely revisits her experience of how she handled my daughter's birth 8 years ago. Just yesterday, I received a call from Carla apologizing to me for how she chose to show up for me during my most painful moment of my life when we were diagnosed with myotonic dystrophy eight years ago. On that call Carla and I shed a lot of tears and then she asked for my permission to write about it. There is a life lesson in here for everyone. If her message resonates with you, please share this with someone you care about and we can start a beautiful circle of healing.

The greatest gift that Kayla has taught me in life is to lean in and I'm proud of how I lean in for others during difficult times. Do you lean in?

Oh, and Carla, I forgive you and appreciate how you've leaned in and bravely written about a topic that not many people are willing to talk about. You bring so much love and beauty into my life. I love you sweetie!

Do You Lean In? By Carla de Cervantes:

Signing out for now...

Lisa (aka: Big Girl Kayla's Mom (Kayla says I can't call her Baby Kayla anymore)) My little girl is growing up.