Tuesday, June 16, 2009

Our Journey with Myotonic Dystrophy


2 comments:

Sharon said...

Your family album is our family album . . .Michelle was born with Myotonic Distrophy (DM 1) in 1975.
Kayla' & Michelle could have been sisters. Same face & hair.
Don't let the school system put road blocks in front of you.
Michelle went through Middle School and High School & 2 years of College. We demanded and pushed for Inclusion in all classes. She graduated with an IEP diploma. Our adventure continues. Good luck to you.

Shona said...

Thank you for making this website and sharing your story. It made me very emotional to watch the video and read about all you have been through as a family. We also have myotonic dystrophy in the family.