Thursday, July 28, 2011

"Thank You For Kayla!"

It has been a long, long time since I've written in my blog. So many people have asked how Kayla is doing and many were worried that my lack of blogging meant that Kayla wasn't doing well. Well, my apologies for being so out of touch. Instead of writing a lengthy blog post about all of Kayla's accomplishments since December of 2009, I thought I would share this video that I took of Kayla last night as we started her birthday celebration. This video just says it all. Happy 6th Birthday Kayla. You are the most loving and special girl I could have ever wished for.
Love,
Mom

From the mouth of babes:
"I wish for all the families, and I wish for all families and I wish for all families and thank you for a happy, and thank you for all, um...oops, let's try again. I wish for all families, and thank you for this house, and thank you for all these families singing this happy birthday song. I want to see you. Thank you for this and thank you for nana and papa and thank you for David and mom and thank you for all the family. Thank you for daddy and thank you for all these daddy's and thank you for all these families." Yeah! .
"Thank you for Kayla!" (Lisa), "Thank you for this and make a wish." "And World Peace." (David) Everyone clap. Papa, make words. I want to make a wish first. Thank you for all families and thank you for all...make a wish David.
"It's Caillou, look..."
"Thank you for Caillou!" (Lisa)

13 comments:

Rob said...

OH WHAT AN AWESOME VIDEO - you're right - it does say it all. I'm so proud of her and to the miracle that she is. This made my day. I was florred when I saw it. What progress she's made - juts wonderful.

Shona said...

Happy Birthday Kayla!

What a lovely video.

Katie said...

Happy Birthday Kayla,
seeing your progress and how hard of a life you have had all i can do is look at my 6 year old sister an hope she will not have what we do. although you have the type one and I have the type 2 witch occurs later in life but all and all I really hope that your life will only get better.

Katie said...

Happy Birthday Kayla,
I just found your blog online and it showed me what really can happen with myotonic Dystrophy and I am very pleased that you are doing so well. I was just diagnosed with this in january but I have type two witch occurs later in life right now i am 21 and have been fealing symptomes for the last two years. I also have a 6 year old syster and it is hard for me to think that she may feel this way as well but after reading your story and see how well you have overcame all your problems so far I can only hope the best for all of us in our up coming years. so again Happy Birthday from now and all your many birthdays to come. also enjoy your great family and remember they will always be there for you.

Leigh and Summer said...

Happy belated Birthday Kayla! I hope you have a year full of all the things you love, and lots of people who love you! Thank YOU for showing me what is possible for my little girl.
Leigh

Jenna said...

Hi
My name is Jenna and i came across your site. I hope you had a very awesome, and special birthday Kayla. I hope your birthday was just as special as you are! You are wonderful, amazing, special and precious earthly angel. Kayla is a miracle, I am sure she makes her mommy and daddy proud! I was born with a rare life threatening disease, and love it when people sign my guestbook. I love Caillou! www.miraclechamp.webs.com

omayra said...

I'm happy for kayla . My son was born with the same disease I know how u feel my son is turning 4 Oct 15th but Zion is his name has brain damage aswell he doesn't walk nor talk ,but he's awsesome . I'm happy to see kayla up and around god bless u n ur family.

Kathy said...

I found your site in my research for beginning a similar blog on how Myotonic Dystrophy has affected our family, both as the Adult Onset form and the Gongenital form.
Thank you so much for being brave enough to go ahead with this project. It is and inspiration to me.
Kathy

Elizabeth Schiff-Heedles said...

Hi, I just found your blog. My son was diagnosed 2 days ago with congenital myotonic dystrophy. He is 9 months old. I'm heart broken & have no words. We have our big apt Oct 3rd. Until then my husband & I are left alone, fighting the tears. I am trying to gain some hope but am so confused & lost. Hope u see this & maybe I can email you.
Liz

Kayla's Mom said...

Hi Elizabeth,

Thank you for reaching out to me. I'm so sorry to hear about your sons diagnosis. I would love to talk with you. Contacted by email and i'll send you my phond number. My email is lisa@ global.t-bird.edu.

Lisa

Anonymous said...

I was wondering if there is a support group?

Anonymous said...

Is there a support group? For my sister, who is now going through this?

Kayla's Mom said...

Yes, I helped to found an organization to help families living with myotonic dystrophy. You can find the website at www.myotonic.org. Where does your sister live? Feel free to email me lisa@global.t-bird.edu.