Sunday, September 12, 2021

3rd Annual Kayla Vittek Memorial Award for Outstanding Community Advocate Goes To...

Let me introduce you Alexandra LeBoeuf, the winner of the 3rd Annual Kayla Vittek Memorial Award for Outstanding Community Advocate for her work in designing the logo for our 1st International Myotonic Dystrophy Awareness Day today, September 15, 2021

Watch this brave and inspiring young lady living with juvenile-onset myotonic dystrophy share her story. She's an inspiration to the community of families and researchers working around the world to treat and cure myotonic dystrophy.

I'm honored to introduce you to Alex! 

0:00 - Intro to Day 2 of MDF Family Conference & Remembering 9/11 - Tanya Stevenson, MDF CEO 
3:20 - Intro to Stories of Inspiration - Tanya Stevenson, MDF CEO
3:50 - 3rd Annual Kayla Vittek Memorial Award for Outstanding Community Advocate - Lisa Harvey-Duren, MDF Founding Executive Director & Kayla's Mom
7:53 - Alexandra LeBoeuf, Artist and Winner of the International DM Awareness Day Logo Contest
21:38 - Julie and Michel LeBeouf, Parents of Alexandra LeBeouf

#MyotonicDystrophy
#InternationalMyotonicDystrophyAwarenessDay
#MyotonicDystrophyAwareness
#MyotonicDystrophyFoundation
#CureForKayla

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